People often want to make sure that they have put their affairs in order so they won’t put any extra stress on their family after their death. Some people find it easier to think about what will happen to their money and property than how they would like to be cared for at the end of their life, but both are important.
Why you might want to talk
Talking about the end of life can be very emotional, both for the person who is nearing the end of their life and for their friends and family. Your friend or relative may avoid talking about it because they:
- don’t want to upset anyone
- are superstitious – they think talking about it will make it happen
- don’t want to be seen as morbid
- assume you know their wishes
- don’t know what their options are.
Don’t assume that there's no need to have the conversation because, for example, they think they don’t have anything to leave in a will, or they have a particular faith so they’ll want to have a certain sort of funeral. It’s easy to overlook things or make wrong assumptions, so it’s good to talk things through to make sure you have a clear understanding of what they want. Discussing things out loud can be helpful for your friend or relative too, because they may be unsure of exactly what they want for themselves.
Talking things through can be a positive experience for both you and your friend or relative. The benefits of talking include that:
- they'll feel in control
- they'll have the relief of knowing that their wishes have been documented
- you will know what they want and won't have to worry about getting it wrong
- it helps family to feel involved
- it can avoid stress and disagreement between family members if they have to make decisions on a relative’s behalf or after they’ve died.
How to start the conversation
You might not know how to begin talking about end-of-life planning. Use triggers to introduce the subject – talk about something that’s happened to someone you know, TV programmes or news items. Ask questions that encourage your friend or relative to think about what they truly want:
- How would you feel in that situation?
- Are there any treatments you wouldn’t want?
- Have you thought about writing down what you want?
Listen carefully to what they have to say. You don’t have to focus on a worst-case scenario, because this may make your friend or relative feel uncomfortable and sad about the future. Instead, you can frame your questions in a way that focuses on what matters most to them.
For more tips on how to raise the subject, read Compassion in Dying’s guide Starting the conversation.
What to consider
There are many things to consider when planning for the end of life. These might include:
- where your friend or relative wants to be cared for – for example, at home, in a care home or in a hospice – and where they might want to spend the end of their life
- legal and financial matters, such as making a will or setting up a power of attorney for property and financial affairs
- what sort of funeral they would want and how it might be paid for
- where you can find details of their will and any bank accounts, insurance policies and bills they have, for example
- what will happen to their pets.
Your friend or relative’s wishes concerning their care and treatment can be recorded in:
- a power of attorney for health and welfare
- an advance decision (sometimes called an advanced directive in Scotland), which, if set up correctly, is legally binding and lets your friend or relative specify treatments they wouldn’t want to receive in certain circumstances. For example, they might want to say that if they were in a coma they wouldn’t want CPR if their heart stopped. Advance decisions would be used if your friend or relative lost mental capacity, which is the ability to make and communicate a decision when it needs to be made
- an advance statement, which is a written statement of their wishes for their future care and treatment. It isn’t just about medical treatment – they can also include preferences about other matters, such as their daily routine and what food they like. It isn’t legally binding but anyone making decisions about a person's care would have to take it into account if that person lost mental capacity.
They may benefit from support from a trained counsellor or organisations that deal with specific long-term conditions.
How you might feel
Having these conversations with someone you care about can be difficult. You might be anticipating the loss their death will cause. Talk to someone you trust if you're struggling with your emotions.
If you live together, you could also be worried about how you would cope with practical tasks that you rely on the other person for. Make sure you know how all the appliances, the heating system and any alarms in your home work. If they do all of the cooking or look after your finances, for example, you may want to consider learning new skills. Councils and local charities may run courses in basic skills like DIY and cooking – or see if there are local services that can help you.
Also of interest
Also in this section
Next steps
Read our guide Planning for the end of life for more information about why to plan, things to consider and where to get support.